Cystic Fibrosis Awareness Month May 2023

🌷🦋💙 May is #CysticFibrosisAwarenessMonth, a time to shine a light on a disease that affects more than 70,000 people worldwide. This progressive, genetic disease causes persistent lung infections and limits the ability to breathe over time. It’s a journey filled with challenges, and those who face it display incredible resilience every day.

Among the many conversations that we need to encourage during this month is the role of Hospice Care in the lives of people with Cystic Fibrosis. Though often associated with feelings of sadness and surrender, Hospice Care represents something quite different – a space of peace, comfort, and dignity, especially during the transition towards end-of-life.

The work done by organizations like the Mary Boleyn Hospice Foundation Inc. (@maryboleynhospicefoundationinc) cannot be overstated. They offer not just medical attention but also emotional, psychological, and spiritual support to patients and their families. Their team strives to ensure that the last chapters of a person’s life are lived with as much quality and respect as possible.

Hospice Care provides:

  1. Pain and symptom management: Helping the patient maintain comfort and dignity.
  2. Emotional and psychological support: Providing counseling to patients and their loved ones.
  3. Spiritual care: Addressing questions of meaning, faith, and connection.
  4. Respite care: Giving caregivers a chance to rest and rejuvenate.
  5. Bereavement support: Helping loved ones navigate grief and loss after a patient’s passing.

As we raise awareness about Cystic Fibrosis this month, let’s also bring Hospice Care into the conversation. We encourage you to learn more and advocate for this essential service by visiting

The journey with Cystic Fibrosis isn’t easy, but together, we can ensure that it’s a journey filled with love, dignity, and respect. 💙🦋🌷

#CysticFibrosis #CFWarriors #HospiceCare #EndOfLifeCare #MaryBoleynHospiceFoundation #CFAwarenessMonth